Reflection

My daughter has a “disease”…FOOD ALLERGIES. But that doesn’t make her disabled. That doesn’t mean that we can’t be around people or have people visit us. It doesn’t mean we don’t want to be invited! It doesn’t mean that people have to be scared to come over to our home and play with her. Or have people visit with food. This just means we (her parents) need to be careful. This just means that me, her mother, will be a little more watchful of her when we go places and pay less attention to conversation (my apologies-I may look like I have ADD). It means I’ll have to learn to multi-task. It doesn’t mean that her life is restricted from living it normally like all others without food allergies do. We are learning to LIVE WITH IT! It just means her mom will be anxious, so get used to it. This is the new me…the permanent me. I’m not going to change. It doesn’t mean that I’m not a good friend or fun to hang out with. It just means my senses will be heightened and you may not be used to that. I may be listening to you but staring at my child. It just means that I love my child more then anything in this world and she is NUMBER ONE in everything I decide to do and everywhere I decide to go. Josie is an amazing, fun, loving, sociable, full-of-life little girl. And if you know her, YOU KNOW THAT! And she plays well with EVERYONE, of all ages. She loves to laugh and sing. Dance and dress up. She’s a normal little girl, who loves to play with her friends. Please don’t exclude her because of her food allergies. Trust me when I say that I am always prepared and ready to jump into action if needed. You cannot possibly imagine how my mind spins 24/7 with worry. But more than ever before, it’s now the time to let go just a little bit and it’s time for me to realize that THIS is our life. It is not going to change. THIS is how it will be. THIS is how we are going to have to make it work. I have NO control over curing her. But what I can do is give her the most normal life possible without making her feel left out. I won’t make her feel left out anymore. I won’t keep her home because of MY worry. She’s getting older and starting to realize it. She senses my anxiety, stress and worry. And I can’t help but say shame on me for allowing her to see that. Now I realize that for her sake, I need to step away and find a way to worry without showing her. She’s a smart little girl! So day by day I will give her a little bit more independence…but I’ll never, ever stop hovering. That’s the mother I will always be for Josie. I was meant to be her mom.

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A Progressing Pregnancy: Journey into Becoming a Mom of 3!

Adventures of a mama who has miscarried…3 times. Why so many strips/tests? PROGRESSION! Why so many in one day? It’s all about the science behind it! Knowing when and what time your body double/triples in hCG. This is a sign of a progressing pregnancy. At the top we started on 7/28 and towards the bottom we landed at today 8/6 (which looks like a double/triple from last night because the line is much darker). The strip right above it was 12 hours ago. So while I was sleeping (or trying to with a sick 10-month-old), this baby was growing. Usually this is tracked by a blood test as well (which I’m also doing). I am scheduled tomorrow for my third re-check. But it’s much more mind easing when I can also track it at home. When Amazon sells packs of 50-100 pregnancy tests, do you ever wonder “why so many? Who will actually use all those?!” People like me. People who’ve experienced loss. People who can’t rest until they know baby is safe and thriving as he/she should. I’m not crazy, I’m just in tune! Besides, it saves me the $35 co-pay and the trip to the doctors all the while hauling my kids there. Peace of mind y’all. It puts my anxiety in check. That’s what this is about. You won’t understand, unless you’ve experienced loss yourself. I’m happy to share my journey into motherhood with y’all for the third time.

Let’s do this!

 

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Juliette: 3 Months Old and First Christmas

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Dear Juliette,

I don’t even know where to begin with this blog post. I didn’t want to talk about this on the blog, only because it makes my stomach turn. And I haven’t wanted to sit down and type the words out. I didn’t want to remember. I didn’t want to recount the moments where I almost (or so I thought) lost you. Just like I haven’t wrote about the story of almost losing your big sister to anaphylactic shock back in April. Because it brings back horrible memories, I start shaking just thinking about it and I honestly feel like I’m going to have a panic attack. But here we go…

It was a Friday and everything was as normal. I was giving you a bath around noon. Afterwards I took you to your crib where I would get you dressed and put on a clean diaper. It’s during that time that you usually cry because you hate it. You cry differently, though. It’s a mad cry. But you mad cry a lot. You get mad VERY easily and you’re very temperamental. I was just taking my time because I know that letting you cry isn’t going to “kill you”. At least that’s what I’d always say. But then your cries turned into silence and choking and you stopped breathing. You were stiff as a board and eyes were a steady gaze. Almost like you were having a stroke or a seizure. You wouldn’t flinch when I’d touch them. You were making this God awful grunting sound and starting to turn blue. When seconds felt like minutes, I ran out of the bedroom and into the living room to Facetime your daddy. I was in a panic and screaming “she’s not breathing!” He said “CALL 911!” So I quickly hung up and did so. 911 was awful! It makes me seriously scared of anything ever serious happening again. This woman I was talking to was an absolute idiot. I repeated myself over and over again. My address, my situation, my name. I BEGGED her to tell me how to do CPR on an infant. I’m a registered nurse for God sake, where was my brain? GONE! Everything I knew was gone. I was blank! I was out of body. I was having a panic attack. I couldn’t catch my own breath. Sobbing on the phone to this stranger, begging her to help me! You were not breathing. Time is brain, time is brain, time is brain…that’s all I could think. “HELP ME!” I kept screaming to the 911 lady. “TELL ME HOW TO DO CPR!!!!!” She never answered me. Not once. I started pumping your chest with my fingers, I laid you flat on the ground. I tilted your head back and stuck my finger in your mouth. Were you choking on something? Nothing was there. I was crying, begging you to stay with me. You were turning pale. I was terrified. What seriously felt like hours, was simply seconds turned into minutes. Time was at a stand still. You were starting to turn blue. “BREATHE!” I was pleading to God to please not take you. I’m so sorry I let you cry. I’m so sorry I didn’t pick you up. I’m so sorry, Juliette, I’m so so sorry. I had no idea what was going on. I had no idea what I was doing. Giving you CPR was terrifying. As Josie stood there and watched, all I could remember was her saying “oh no, baby sister!” I heard sirens (finally!) and 10 men ran into our home. They took you out of my arms and hooked you up to an EKG machine. At this point, you were breathing again. Your color was starting to slowly come back and you were so completely and utterly exhausted and fatigued that you could not keep your eyes open. You were pale. Almost lifeless. What the hell just happened? I didn’t know. But you were breathing now. Shallow. You were okay. Thank God! I was devastated, trembling. Josie was crying and hid behind her easel in her playroom. Scared. Scared of these men. The machines, the noises. We were both scared in tears. What just happened? What just happened to my baby? Your daddy took an emergency helicopter home that day. He came home that night about 5 hours after you were taken to the hospital. That’s as quickly as he could make it. And honestly, very fast considering his circumstances. EMS took you to the hospital. Josie and I followed after I packed and pumped my extremely engorged breasts (because I was trying to quit producing so much at the time). When we arrived at the hospital you were fine. Normal. Vital signs stable. As if nothing ever happened. The only thing that changed, leading up to this event, was that I gave you Earth’s Best dairy based baby formula. But you were fine. I had given you that several days before this. It’s the only thing I could think of that may have caused this. The doctor came in when I got there. He was a fantastic doctor. He truly listened. He cared. I told him what happned. But then I also showed him the videos. Thank goodness we have cameras all over the inside and outside of our house. These were life savers at the time. As Bobby was able to watch what was unfolding from hundreds of miles away, it was also recording important information. As I told him what was happening, he was convinced you were having a seizure. But after showing him that actual video and the events that occurred, he later changed his mind.

Diagnosis: Breath holding spell.

WHAT? Why? Babies do this? What do you mean she held her breath?

Yes. As much as that was a relief to hear, it was that much more concerning too. How often will she do this? Why does she do this? What do I do? The doctor says: “you walk away.” WHAT? NO! How do I just walk away when your child isn’t breathing, turning pale, blue and stiff as a board for up to a minute? How does a mom just do something like that?

You.just.do.

“Blow in her face” he says. “She got really, really mad.”

That came as no surprise to me honestly. Because you do get mad at EVERYTHING. You cry over everything.  And it’s never just a simple baby cry. It’s a scream, yell and mad cry.

Oh boy! This is different. This is going to be a challenge. You are going to be a handful, sweet girl. God is really giving me a run for my money this time, isn’t he?

Sometimes I feel like life is all a test. How far can you press me? How far are my limits? Nothing seems easy. Nothing seems like it’s just day to day and I can relax. I’m always uptight. I’m always so aware and my senses are heightened when it comes to my surroundings and my children. Since having children and almost losing both of them, I cling to home. It’s terrifying. And even more so when you’re experiencing these events all alone. With no family around. I should mention though, that I do have a wonderful neighbor. She was there when I needed her and came over to make sure everything was okay even though she was so busy planning her daughters 2nd birthday party. She even came up to the hospital to see us. I am so grateful for her and her friendship. It means a lot to me.

I can’t write anymore than that about that particular situation. Luckily, you haven’t done it again…yet. But I’ve been told you will. Even the pediatrician, that next day, told us you would. She told us to blow in your face, walk away and let you learn to be without me. I can’t though. As much as these moments of anger that you constantly express, I hold you. No matter how stiff your body becomes once you’re mad (which is almost every single cry), I try to bend you and sit you on my lap. I put my face next to yours and say “it’s okay”, “I’m right here, baby.” It’s terrifying.

God always gives me these situations. I know it only makes me stronger but I don’t want another reason to lose sleep. To keep one eye open. To have you stay in our room longer. To feel like I can’t walk away. To be terrified just to let you cry just a little. I jump at every whimper. It’s truly hard. You are so different, Juliette. Nothing like your big sister. It’s fascinating to me how different you both are. She was so easy. You are such a challenge. I’m grateful I’m not working because you take a lot of my energy. Most of it, actually. Some days I feel like I’ve given Josie about 2% of me. Some days come and go and I feel like I haven’t even acknowledged her. You require me in sight at all times. I can’t put you down without a cry and scream. And it’s always a mad scream. If I walk away and am out of sight, you scream. A part of me thinks that you’re a needy baby. But a part of me thinks this is because of that particular event. You are terrified. You don’t want to be left alone. As much as it scared me, it scared you, too. I just don’t know. All I know is that motherhood is tough. I don’t have it easy with you two girls. It’s always something to worry about. You keep me on my toes. Both of you. And at any given moment when things start to seem out of the ordinary with either of you, I jump, shake and start to breathe heavy. I feel like a panic attack is setting in. I’m learning to talk myself down. Learning to breathe and convincing myself to calm down.

Oh a happy note, you’re growing so fast. You are such a chunk! You’re gaining weight so quickly and you eat a ton! You’re a very gassy baby though no matter what you eat. And I am having a hard time getting you out of that Rock n Play. I wish I never would have bought it, honestly. I know it’s the feeling of being cradled that you love.

Your head control is awesome. Much more advanced than Josie’s was at your age. You’re strong! So strong I almost feel like you could get up and walk away when you have your moments of stiffening your legs in a rage.

Your smile is contagious and adorable, though. You do have a sweet side, believe it or not. I didn’t want to sound like you were an awful, terrible baby in this post, because you’re not. You’re a sweetheart. I think you are just trying to figure out this world. Figure me out and figure out how to be independent without my arms holding you 24/7.

I’ve been struggling to get my milk supply down. No matter what I’ve tried or how hard I try, I can’t get it to stop producing SO much! It’s definitely painful and stressful. I’ve dealt with clogged milk ducts, engorgement and lots of pain. I will be happy when it’s decreased.

I don’t have much more to say. Other than I can’t wait for you to grow out of this phase. And I do hope it’s just a phase.

I love you sweet girl. I can’t wait until you start crawling, mommy needs a break from holding you all.the.time. Despite all that has happened and just how much work you are, I truly do try to enjoy these moments because time goes by so quickly. Heck, your sister is potty trained. When did this happen? What happened to my baby Josie?

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